Introduction
Out-of-hospital cardiac arrest (OHCA) has attracted increasing attention over the past. Mass participation endurance events are increasing in numbers and along with that the risk of SCA ( Sudden Cardiac Arrests ). SCA, as the name implies, happens without any advanced symptoms, or symptoms that may be camouflaged and not recognised as such. Cardiac Death Registries are maintained to keep a public record of the circumstances that lead to SCA and provide valuable insights into diagnosis of the occurrence and effectiveness of interventions to mitigate its impact.
What does it do?
Cardiac Death Registries are a record of deaths that occurred during exercise or 24 hours after cessation of exercise. They are used to measure and improve the process and outcome of resuscitation care and give insight into risk factors, prognosis, and the effectiveness of interventions to mitigate its impact. Benefits will include: determining clinical outcomes; uniform benchmarking; identifying opportunities for improvement.
Some International Registries
FIFA
FIFA (Fédération Internationale de Football Association) officially launched a worldwide Sudden Death Registry (SDR) in January 2014 till 2018 to document fatal events in football. A total of 617 players with sudden death were reported from 67 countries; 142 players (23%) survived.
https://www.uni-saarland.de/fakultaet-hw/fifa.html
Cardiac Arrest Registry to Enhance Survival (CARES)
CARES is developed in the US to help communities determine standard outcome measures for out-of-hospital cardiac arrest (OHCA), allowing for local quality improvement efforts and benchmarking capability to improve care and increase survival. It was started in 2006 and is still in running. In 2020, The registry represents a catchment area of 145 million people (45% of the US population).
https://mycares.net/sitepages/aboutcares.jsp
Purpose of our Registry
The Indian Cardiac Death Registry is an initiative of YouTooCanRun and Dr Aashish Contractor ( Sir HN Reliance Foundation Hospital) to capture cardiac deaths in Indian sporting events. Collecting data is an essential first step in determining the subsequent steps needed to strengthen the chain of survival within a community. There’s a business mantra that “it is hard to manage something if you don’t measure it”. Communities that don’t measure their OHCA outcomes are not only unable to gauge their performance but also lack a reference point to determine the impact of any implemented quality improvement efforts. With this idea, we have developed this registry to capture the data on the sudden cardiac death in the community and help them for the betterment of society.
Dr Aashish Contractor
M.B.B.S, MS(Exercise Physiology & Cardiac Rehabilitation), University of Virginia, USA, Certification, Clinical Exercise Specialist, American College of Sports Medicine, Certification, Advanced Cardiac Life Support, American Heart Association.
Dr Aashish Contractor is currently head of the department of Rehab and Sports Medicine at the Sir H.N. Reliance Foundation Hospital, Mumbai, India. He had the distinction of being part of the Asian Heart team which treated the Prime Minister of India, Dr Manmohan Singh, after his redo bypass surgery in January 2009, and was in charge of his post-surgery cardiac rehabilitation. He is widely recognized as the pioneer of cardiac rehabilitation in India. An alumnus of the University of Virginia, Dr Contractor has worked and trained in the United States under the leading experts in his field.
How to fill the form?
Before filling up, the responder should have all the details of the deceased beforehand.
If the respondent doesn’t know the details then the non-mandatory ones should leave the section blank.
The respondent should fill up the Mandatory units which are in star mark(*)
Respondent needs to select the proper drop-down options and if they select ‘others’ then they need to specify.
How will it work
The Indian Cardiac Death Registry aims to be repository of all publicly known deaths occuring in sports and endurance events. With the help of the categories mentioned in the registry the data collected will be vastly divided by sports, age group, place of incident, and an event reported. Local Good Samaritans will help the team to help fill out the data, as completely as possible and ensure completeness and integrity.
It is hoped that in due course of time the data will be become meaningful enough to draw conclusions for treatment and event day preparedness.
Data privacy
The data will not be shared with any person, institute, or private entity for any reason. Only the aggregate data will be disclosed annually for the public to access and not the individual data.
Coming Soon
